Day 24

· Ruby's IWK Journey

Written by Thomas

So the rest of Ruby's day yesterday was pretty quiet. Some adjustments were made to the ventilator, but the RT ended up switching them back because Ruby's sats dropped. Everything was going well until we were about to go to bed, Charlotte was holding Ruby and had just put her back and her sats dropped again. This time they held around 80 so there wasn't any panic. They tried rolling her onto differen sides, but nothing really helped. She got an x-ray and they saw that her lungs were pretty wet. So she got an extra dose of diuretics and they put her on her belly (she needed extra sedation for that).

This morning she is still sleeping on her belly (prone) and sedated, but her sats are in the 90s. Yesterday the intensivist (doctor in charge of the PICU) was new to us (just came back from vacation) and last night it was the same doctor as when Ruby was first brought into the PICU (we hadn't seen him since, he travels around Canada). Last night, well before all the saturation issues, they decided that Ruby should get a CT scan. They're reason was that they don't really know why Ruby is having such trouble, even taking into consideration the infection. So we are hopeful that they find something in the CT scan that they are able to treat.

Today is three weeks since Ruby's surgery. We are tired, missing our girls, and missing home. We really want Ruby to get better. We don't want anything more to be wrong with her, if she just needs time to heal we will give that to her. If there is something more going on, we need to know so she can be treated. The doctors didn't suggest anything that they suspect, but the scan will let them see what the blood vessels look like going in and out of her lungs and should give a clearer picture of what's going on.

Please keep little Ruby in your prayers, she has come a long way from three weeks ago but still is in no shape to be going home.