All moved into our room in MSNU.
Ruby had a pretty good day, and had some smiles for me which was so sweet!
Her bloodwork this morning came back with a higher white cell count, so they are going to repeat it and stay vigilant since it could be she has an infection somewhere. Hoping it's just a blip and nothing comes of it.
They have taught me how to suction her trach for when she coughs, and how to give her subcutaneous injections of enoxaperin (anticoagulants done similar to insulin injections).
I'm hoping we won't need the trach for long, but the ENT may want to leave it where the transition away from it can be challenging with little babies. We will hopefully talk to her on Monday to see what the plan is, or at least what the hopes are. Ruby is driving this ship after all. We'll get "trach trained" in the next few weeks either way. So learning all the things we'd need to know for her to go home with a trach in place.
Her x-ray and echo both looked good, lungs are a bit wet still, but better. Her echo showed that the clot is gone, and it seems to have moved and filtered out through the lungs or was reabsorbed. They noticed it was gone last week (but somehow no one told me) and finally rechecked today. Functionally it's hard to tell if her heart is doing better without going back to the cath lab. Any progress they can see is pretty slow, but that's to be expected.
She stopped one of her meds for pulmanory hypertension yesterday, because it was hard on her liver and wasn't treating the issue (high left atrial pressure). So far she's doing okay without it.
Happy to be out of ICU, but after being there for a while I know kids often end up back in there after a transfer here. Hoping that's not us, and that we can get things all sorted to go home in a few weeks.
